Getting to Know Us



It is important to put faces and personalities behind the sometimes scary words, Cystic Fibrosis. In this section, we do just that, by offering a space for people to share a bit of themselves and open a window into their world. We would love to add many more faces and stories to this section. Please consider letting us get to meet you.

Johanna
Bittersweet poetry from the United Kingdom


Norma
Check out Norma's website. By far the most complete collection of CF information on the planet.


Becki
A glimpse into a day with CF. Becki is currently on the lung transplant list in Florida.


Toni
Toni shares her determination and spirit.


Shannon & Greg
When someone you love has CF


Kristy

Aussie teen shares her story.


Lucy
Being a mom with CF


Ricky Goes to Clinic
Take a pictorial trip to pediatric clinic.

Camp Mosquito
See photos from a wonderful summer adventure organized by Becki Snyder for young people with lung disease.

Rachel´s Story

Family copes with diagnosis

Ethan's Family
Not just a story...a whole website from a loving family. Really well done.

More to come...




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